This is what we have been going through recently. My eldest has always shown Asperger traits throughout his growing up, but has been very high functioning that it has never been a major issue to him or us as parents. He noticed himself after being at secondary school for a year or so that he ‘seemed’ different to his friends, that’s also when his lack of management skill came into play big time and and we had a discussion with him then to see if he wanted to pursue it further and get a diagnosis. At that time he said no, he didn’t want to be labelled different or have any spotlight put on him and so we helped him along with the school to get him more organised. It has also not hindered him in any way with friends, he has some great friends in the last few years that just accept him and his sometimes ‘odd’ ways and in fact it was one of those friends who encouraged him to go to his GP for help.
However, as he got older and then headed through the pressure of his GCSE’s it started to take it’s toll resulting in high levels of anxiety (which we were totally unaware about as he hid it very well under a laid back exterior) which led to a secondary period of ‘low mood’. This is when he as a 16 yr old then made an appointment with his GP and went off to discuss his ‘depression’ before telling us that he had gone and they were going to follow it up with a referral to our Children’s and Young Adults Mental Health clinic. We have supported him in his decision fully and have found out from our consultations that this high anxiety and low mood is very common in undiagnosed, high functioning, ASD cases in teens. They get to a certain age and then start to feel socially awkward and uncomfortable in a time that is turbulent for most teens anyway! This leads to the high anxiety resulting in a secondary ‘depression’.
We have since then been through the necessary assessments and he got his official diagnosis over the half term. I have emailed his Head of Learning at school to inform him of the diagnosis and arrange a meeting to see what help ‘if any’ he can get in his last year of A levels. There is an urgency to this meeting from my point of view as he has his UCAS forms to send off very soon and they need to know his requirements from school.
What I need to know is what sort of things he could be entitled to from others who are in this situation. If, at the very least, it would be nice if he qualified for some extra exam time, as his writing is atrocious and that could take the pressure of time off him as 2 of his subjects are essay based and he struggles to make his handwriting legible!
I would love to get some ideas from people in the same situation so I have an idea of what I should expect or not when I do get a school meeting.
Can you help?